I woke up this morning to my phone ringing. It’s strange to get a call early in the morning for me, and yes.. any time before the baby wakes up… which I prefer to be around 9:30 in the summer, is early.
Still, since three of the kids are with Ex-h until NEXT Sunday I pretty much jumped. They’re clear over in Tacoma, WA, many hours away from me. So who knows WHAT the call was.
“Hello?” I answered pretty groggily after I realized the number was actually my doctors office. We’ve been struggling to figure out why I am in so much pain and so tired all the time. It’s been ongoing since before I even got pregnant with Risi, but I had thought it was merely stress related.
“Hi, Kisa?” the nurse sounded kind of chipper, but I guess that IS part of her job when she’s calling people.
“We got the result of your labs and one of the tests came back positive. It’s autoimmune so we’re going to have to refer you to a rheumatologist so they can help you further.”
“W…wait… what? One came back.. positive?” I wasn’t even 100% sure what we were blood testing for, this time!
“Yes, I’m not sure which one… but we have to refer you… I can check which one if you like?”
“Oh..yeah, yes.. please?” I was in shock as I waited, she apologized for the ‘delay’ which was nothing, since her computer was ‘slow.’ Really it wasn’t. She was right there on the phone, so even if it took two minutes for her to read the information and get it figured out in her head before she could relay it to me.. I’d waited over a week, I could wait a few more minutes.
“Well, it looks like you’re ANA positive..” she explains a little bit more, but can’t explain much since the rheumatologist has to look further.
In the end she says they’ll get a referral out soon, and the rheumatologist will call me to set up the appointment.
Of course I couldn’t go back to sleep after that! So I rolled over and searched the internet for what it could mean.
I shouldn’t have looked, because now I will be wondering what it is until we can do.. maybe more testing? To figure out what it is. 🙁
It’s gotten progressively worse overtime. To be honest I thought with all of my symptoms I was looking at something more like fibromyalgia. I am not sure what really explains my forgetfulness and just fuzzy brain feeling then. I guess … I’ll know eventually.
The past couple of months have been rough on me, and I am hardly keeping myself afloat at times. Still.. I guess… you know… finally knowing what it is, and having actual treatment options to go from? That’ll be nice. Instead of “well let’s throw this at it, and take some more tests.”
So, if I’m a little slow on things. Or forgetful, please try and have some patience? I’m trying hard not to be a total flake and such… so if you have to remind me of anything, please don’t feel bad in doing so. My brain just needs some help while we try and figure out what we can do for all of … everything I’m going through.